Annie Sedoric

Annie Sedoric's Fundraiser

Support Children's Brain Tumor Foundation and my Chicago Marathon run! image

Support Children's Brain Tumor Foundation and my Chicago Marathon run!

Because of your donation, brain tumor families will know they are not alone!

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$1,630 towards $2,100

In honor of my participation in this year's Chicago Marathon, I kindly ask you to consider making a generous donation to support the Children's Brain Tumor Foundation (CBTF) and its essential work. For over a decade, CBTF has been a national leader in providing programs for families affected by brain tumors.

In April, 2022 I underwent brain surgery at BWH in Boston. Only a month prior I was diagnosed with a rare, incurable, disease called acromegaly. I was 24 years old, and just had moved to NYC to start “adulting”, but really I felt like a kid. I could not have gone through the experience of brain surgery or receiving a lifelong diagnosis without the support of my family, and they could not have gone through it without the support of others.

I felt like my life was over, but it really had only begun at the age of 24. I want the young kids that go through these incredibly hard experiences to know that their lives are just beginning and traumatic medical experiences are not defining. In November, 2024 I ran the NYC marathon for the National Organization of Rare diseases and this coming October I could not be more proud than to raise money for CBTF while showing myself, and others, that I am strong and capable even when living with Acromegaly.

In its 35 years, CBTF has transformed from a local New York organization that offered families access to information and peer support into a national entity that delivers unique programs to support families throughout their brain tumor journey. As the founders of the Children’s Brain Tumor Network, CBTF believes that collaboration is crucial in the pursuit of a cure and in addressing the often devastating long-term effects of brain tumor treatment.